ABOUT CMT
Charcot-Marie-Tooth (CMT) disease was first diagnosed by three physicians Jean-Martin Charcot, Pierre Marie, and Howard Henry Tooth.
Currently, it is incurable.
This disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people.
CMT usually isn’t life-threatening and almost never affects brain function. It is not contagious, but it is hereditary and can be passed down from one generation to the next.
In 2010, CMT was one of the first diseases where the genetic cause of a particular patient's disease was precisely determined by sequencing the whole genome of an affected individual.
In the US, The prevalence of CMT disease is 1 person per 2500.
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CMT STORIES
Had this all of my life but Dr's up until 2003 said it was "all in my head" UGH! I was adopted within my family and while others have/had it no one had been diagnosed until me. They had all been treated for an array of other ailments from arthritis to carpel tunnel. By the time an emergency room (was there for emergency appendectomy) Dr noticed that something was very wrong with my feet and hands I was in so much pain that all I wanted to do was cut off my legs. He sent me...(continue reading)
I have a little-understood disorder called Charcot-Marie-Tooth disease, which is, basically, a disorder of the nerves; it is one of the most common neurological (neuromuscular) disorders, affecting as many as 37 out of 100,000 people in the US. It causes increasing weakness in the arms and legs, increasing insensitivity to touch (neuropathy), and other problems.
I now use a wheelchair. I have used a wheelchair since I was thirteen years old. (I'm now forty.) I was first diagnosed with this disease when I was ten after having painful tests; by the time I was 11...(continue reading)
Oli Dolly
"Le Petit Monde de Oli Dolly"
I'm Olivia, I'm 28 and I live in Paris. I was diagnosed with
Charcot-Marie-Tooth when I was two years old. I got it from my dad.
I've never really hidden my disease from anyone, but at the same time...(continue reading)
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